LEND Trainees and Faculty Research Team Project Archive

Past Faculty/Staff/Trainees Publications, Presentations and Products

* indicates current or past trainee

PEER REVIEWED PUBLICATIONS
Edwards KS, Towle P, Levitz B.
Incorporating Life Course Theory and Social Determinants of Health into the LEND Curriculum. (2014). Maternal and Child Health Journal,
18:2, 431-442.
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Moran J, Rafi M, Keller S, Singh B, Janicki M. (2013). The National Task Group on Intellectual Disabilities and Dementia Practices Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities. Mayo Clinic Proceedings, 88:8, 831-840.
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*Rao T, (2013). Implementation of an Intensive, Home-Based Program for Parents With Intellectual
Disabilities, Journal of Public Child Welfare, 7:5, 691-706.
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Towle P, *Vacanti-Shova K, *Shah S, *Higgins-D’alessandro A. (2014). School-Aged Functioning of Children Diagnosed with Autism Spectrum Disorder Before Age Three: Parent-Reported Diagnostic, Adaptive, Medication, and School Placement Outcomes. Journal of Autism and Developmental Disorders, 44:6, 1357-1372.
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National Gateway to Self-Determination, Issue 3, September 2012.
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Bonuck K, Rao T, Xu L. (2012). Pediatric Sleep Disorders and Special Education Need at 8 Years: A Population-Based Cohort Study. Pediatrics (Online). doi: 10.1542/peds.2012.0392.
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O’Hara DM, Seagriff-Curtain P, Levitz M, Davies D, Stock S. (2008). Using Personal Digital Assistants to Improve Self-Care in Oral Health. Journal of Telemedicine and Telecare, 14:3, 150-151.
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Shogren KA, Wehmeyer ML, Reese RM, O’Hara DM. (2006). Promoting Self-Determination in Health and Medical Care: A Critical Component of Addressing Health Disparities in People with Intellectual Disabilities
Journal of Policy and Practice in Intellectual Disabilities, 3:2, 105-113.
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WEB-BASED MATERIALS
Edwards KS, Havercamp S, Cohen LJ, O’Hara D. Adult Health Case-based Modules: Module 1 Understanding Health and Health Promotion for People with Intellectual Disabilities. 2013.
http://www.iddhealthtraining.org/

Edwards K. “Adult Health Case-Based Modules: Cases 1-4.” 2013 curriculum packet on Interdisciplinary Technical Assistance Center Toolbox:
http://www.aucd.org/itac/template/strategy_list.cfm?id=14

Edwards K. “Incorporating Life Course Theory and Social Determinants of Health into the LEND Curriculum.” 2013 curriculum packet on Interdisciplinary Technical Assistance Center Toolbox:
http://www.aucd.org/itac/template/strategy.cfm?id=131

PRESENTATIONS
Edwards K, Towle P, Levitz B, Harris A, and McHugh M. Incorporating Life Course Theory and Social Determinants of Health in LEND Programs. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

Riddle I, Krahn G, Armour B, O’Hara D, Sparling E, and Anderson Elena. Low Cost/No Cost Solutions for Health Activities in Your UCEDD. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

Smith M, Levitz M, Levitz B, Felty W, Wappett M, and Brandt J. Some Strategies on How University Centers Support Self-Advocacy Efforts. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

*Maltby, J., Housing and Transition (November 2013), Autism Connect, Fordham University.
Margo Vreeburg Izzo MV, Carter, E, and Brickel, N. Evidence-based Transition Practices to Prepare Students for College and Careers. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

POSTER PRESENTATIONS
Bentley K, Dunford J, Anderson K, Bitter S, Ayers K and Edwards K. Leadership in Education in Neurodevelopmental and related Disabilities (LEND) Family Learning Collaborative- Continuing Education Program for LEND Family Trainee Graduates. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

Goldfarb F, Schrager S, and Levitz B. The LEND Family Involvement Survey: Findings and Implications from Year One. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

Towle P, *Taratunio M, *DiMaggio N, and *Arpino L. Pathways to Identification and Diagnosis of Autism Spectrum Disorder in Young Children in a High-Resource New York County. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

SYMPOSIA
O’Hara L, McMillan E, Cheetham T, O’Hara D, Spitalnik D, and Edwards K. Health Symposium: Health Care for Adults with Intellectual and Developmental Disabilities. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

WORKSHOPS
Reimschisel T, Marion R, Edwards K, Moeschler J, Bodhurtha J and Palumbos J. Pre-Conference Workshop Essential Clinical Genetics for LEND and UCEDD Programs. Presented at the Association of University Centers on Disabilities Annual Meeting and Conference, Washington DC, 2013.

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PREVIOUS LEND TRAINEES AND FACULTY RESEARCH TEAM PROJECTS

2014-2015

Needs of Young Patients (14-19 years) and their Families Receiving Services in a Pediatric Renal Center Related to their Transition Process to Adult Renal Care

Trainees: Brenday Garcia Morales, Yinaira Reyes Gutierrez
Faculty: Annie Amador Alonso, PsyD, MSW
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Evaluating the Efficacy and Cost Efficiency of a Post-Foster Care Program
Trainees: Polly Appel, Adam Barkey, Kehli Woodruff
Faculty: Jenean Castillo, PhD, Lillian Medina, LCSW, LMSW
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Library Accessibility for Individuals with Intellectual and/or Developmental Disabilities
Trainees: Ann Marie Cellante, Melissa Gomez, Maggie Junior, Audrey Margulies
Faculty: Lauren Kaplan, MSEd, Katie Borras, MS, Karen Edwards, MD, MPH
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Awareness and Utilization of Transition Services among Individuals with I/DD
Trainees: Lisa Manaster, Angela Panagos, Vera Srakhao
Faculty: Tricia Patrick, DrPH
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Meeting the Needs of Children with Developmental Disabilities In Child Welfare Systems
Trainees: Ashley Ausikaitis, Brittany Blumenthal, Julie Griffin,
Faculty: Trupti Rao, PsyD, Beth Reiman, PhD, LCSW
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Longitudinal Study of Children Diagnosed with ASD before Age Three
Trainees: Angela Chlebowski, Stephanie Halvax, Jennifer Ho, Tara Powers
Faculty: Patricia Towle, PhD
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