Resource Source

This interactive tool helps students prepare information that is relevant to IEP development. It will assist them to develop their own draft IEP to be shared with the rest of the IEP team and serve as a helpful resource to facilitate their participation in the discussion. Please find the Student Draft IEP Interactive Tool by clicking here.

By Marilyn Vitale, Mitchell Levitz and Daniel Crimmins 

My Health, My Choice, My Responsibility is a training program developed at WIHD in collaboration with the Self-Advocacy Association of New York State (SANYS). Its purpose is to help individuals with developmental disabilities make healthy choices in daily life and speak up for good health. The seminar consists of eight sessions. Topics include: developing a health plan, self-advocating at the doctor’s office, physical activity, nutrition, safety and cleanliness in the home, hygiene, and emotional health. During each session participants receive information, learn the material through discussion, activities and visual aids, and develop goals. Collaboration with community resources, professionals, and agencies provide additional content and expertise to the seminar. 

The materials include a training program curriculum with a trainer’s manual and three health tools: (1) My Medical Appointment, a form to help prepare for medical appointments; (2) Health Information Form, a record of a person’s health needs and medical history; and (3) My Health Plan, a listing of goals developed during the seminar.

DOCUMENTS FOR MY HEALTH, MY CHOICE, MY RESPONSIBILITY

SELF-PACED LEARNING APP FOR MY HEALTH, MY CHOICE, MY RESPONSIBILITY
My Health, My Choice, My Responsibility is also available as a self-paced learning App through iTunes, a product created in partnership with AbleLink Technologies.

 Download on the App Store

Westchester Institute for Human Development University Center for Excellence in Developmental Disabilities is pleased to announce the website “Taking Charge of My Health: Partners in Health Transition” is now available here. This website provides information and resources on health self-management designed to guide teens and young adults with intellectual and developmental disabilities (I/DD), family members and caregivers to achieve successful health transition.  The website draws on transition experiences of teens and young adults with I/DD, family members and caregivers, and it is based on self-determination framework.  Website development was supported through a grant from the Special Hope Foundation.

In 2015 WIHD collaborated with the NY State Association for Community Residential Agencies (NYSACRA) to find ways to create more housing options for adults with Intellectual and Developmental Disabilities. The WIHD/NYSACRA team brought together housing professionals and other experts to create a Task Force. The team also met with a broad array of stakeholders from around the State, including developers of affordable and supportive housing and members if the I/DD community. In December 2015, they published a detailed report of their findings, and recommendations for how the State can improve the range of options and opportunities for housing.

WIHDs Housing Learning Community brings together people with I/DD, families, provider agencies and housing professionals from all walks of life to help in negotiating the path to long term sustainable housing and support services. In May of 2014 WIHD hosted a conference that brought together national and local experts and members of the Leaning Community to help increase our understanding of current and possible options. WIHDs Housing Resource Guide is a comprehensive description of the eligibilities, entitlements and resources available to people with I/DD and their families who want to create their own housing options independently of congregate care systems.

“The purpose of this series, Research to Practice in Self-Determination, is to describe key issues in the field of developmental disabilities that can be enhanced by considering efforts to promote self-determination.” PDF

Module 1: Introduction to Adult Services

Young people with Intellectual and Developmental Disabilities who are leaving school and transitioning to the world of work and independence are faced with an array of eligibility requirements, assessments and service options that can be confusing. This module will prepare a young person and their family to navigate the social security and disability systems and to understand the steps they need to take to be ready for adult life.

To view on You Tube: https://www.youtube.com/watch?v=4ytPED1Lrdw

To view on Vimeo:  https://vimeo.com/168193845

Module 2: Introduction to Self-directed Services

Adults with Intellectual and Developmental Disabilities are increasingly accessing “Self Directed” services from the Office of People with Developmental Disabilities (OPWDD). This is a big change in how supports and services are provided, and the change can at first seem complicated and hard to understand. This brief introduction, the first in a series on Self Direction, describes the basics of Self Directed services.

To view on YouTube: https://www.youtube.com/watch?v=c8yWKdKvEFE

To view on Vimeo: https://vimeo.com/155841539

Module 3: Introduction to Housing

Housing for people with Intellectual and Developmental Disabilities is going through profound change. The group home system that largely replaced institutional settings is no longer sustainable, and new approaches have to be developed and implemented. This module will introduce the fundamentals of how housing is created, and the emerging options that will provide security and permanency and a fulfilling life.

To view on YouTube: https://www.youtube.com/watch?v=XQ9O8HM7AyY

To view on Vimeo: https://vimeo.com/190766352

HEALTH SELF- MANAGEMENT INFORMATION AND RESOURCES
“Taking Charge of My Health: Partners in Health Transition” provides information and resources on health self-management designed to guide teens and young adults with intellectual and developmental disabilities (I/DD), family members and caregivers to achieve successful health transition. The website, which is currently being updated and unavailable, draws on transition experiences of teens and young adults with I/DD, family members and caregivers, and it is based on self-determination framework. Website development was supported through a grant from the Special Hope Foundation.

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