Information and Training Resources for Youth and Adults with Intellectual and Developmental Disabilities and Their Families
VIDEO TRAINING ON COMMUNICATING WITH INDIVIDUALS WITH DISABILITIES DURING HEALTH ENCOUNTERS
- Communicating with Adults with Intellectual Disabilities Visit with the Occupational Therapist/Social Worker – Part 1 – Adult Produced and Directed by Helen Buhler PhD CCC-SLP 2012 WIHD LEND Program Project in Cooperation with Mercy College VIEW VIDEO
- Communicating with Children with Intellectual Disabilities and their Families Visit with the Speech Language Pathologist – Part 2 – Child Produced and Directed by Helen Buhler PhD CCC-SLP 2012 WIHD LEND Program Project in Cooperation with Mercy College VIEW VIDEO
WEB-BASED RESOURCE MODULES ON HEALTH OF PEOPLE WITH INTELLECTUAL DISABILITIES These modules are designed for LEND and UCEDD trainees to learn more about the adult phase of the life course continuum of health and health care for people with developmental and intellectual disabilities (ID). By using these resources, LEND and UCEDD trainees will gain knowledge and perspective concerning: common health issues for adults with ID; socio-cultural influences on health of adults with ID; self-determination and person-centered care as essential elements of health promotion and healthcare for adults with ID; the importance of competitive employment and place of residence on health status; communication skills as they relate to health and wellness; and the central importance of optimal health status on quality of life and on the ability of adults with ID to live the lives they desire in inclusive communities. Please visit the website to access both modules: http://www.iddhealthtraining.org/ This effort is supported, in part, by the HealthMeet Project of the Arc. MODULES
- Module 1: “Understanding Health and Health Promotion for People with ID” Developed by: Karen Edwards, MD MPH, Susan Havercamp, PhD, Leslie J Cohen, JD, and David O’Hara, PhD Review and Input by: Jamie Perry, MD MPH, Adriane K Griffen, MPH MCHES, and George S. Jesien, PhD, Association of University Centers on Disabilities VIEW MODULE 1
- Module 2: “Communication Skills in the context of health and wellness” Developed by: Karen Edwards, MD MPH, and Catherine Yankou, MPH VIEW MODULE 2
FAMILY-CENTERED AND CULTURALLY COMPETENT PRACTICES These resources guide faculty and training directors on creating family-centered curriculum and learning experiences.
- The website, Families, Disability and Culture: A Guide to Developing Training Curriculum on Families, Disability, and Culture for Trainees and MCH Professionals is designed to help scale-up family-centered/family-directed practices and cultural competency at the individual and organizational level. It encourages the development and implementation of an integrated curriculum that will strengthen trainee’s knowledge, skills and important competencies. This website supports the importance of training MCH and other professionals to incorporate families in program planning, implementation and evaluation, support family advocacy, promote family-centered and family directed practices, and communicate effectively with members of diverse cultural and linguistic groups. The materials provided on this website include excellent resources for MCH training programs faculty, training coordinators and curriculum developers.
- Compendium of Family-Centered Family-Directed Field Experiences
- Guidelines for Establishing Family Advisory Boards
- Resources for Teaching Family-Centered Family-Directed Practices
Information and Training Resources for Youth and Adults with Intellectual/Developmental Disabilities and Their Families
EMERGENCY PREPAREDNESS: MY SAFETY, MY RESPONSIBILITY, MY PLAN
Marilyn Vitale, M.A., author of My Safety, My Responsibility, My Plan is a Program Coordinator at WIHD and can be contacted at mvitale@WIHD.org.
My Safety, My Responsibility, My Plan is a multi-session program to train adults with intellectual disabilities to understand and to be prepared for emergencies. Information is based on the principles set by FEMA, the Department of Homeland Security, the American Red Cross and the U.S. Fire Administration. Download the Training Program curriculum and the Personal Emergency Plan below and follow along with the videos! Each video matches the section with the same name in the Training Program. You will be guided step-by-step to complete your own Personal Emergency Plan. Families can use the Family Guide to complete a Family Emergency Plan. My Safety, My Responsibility, My Plan was developed through corporate funding from Entergy with the support of the Westchester County Department of Emergency Services and the American Red Cross in Westchester County.
DOCUMENTS RELATED TO MY SAFETY, MY RESPONSIBILITY, MY PLAN AVAILABLE FOR DOWNLOAD
- Training Program on Emergency Preparedness Curriculum (69 pages) PDF
- Trainer’s Manual Instructor’s Guide (15 pages) PDF
- Family Guide on Emergency Preparedness Supplement (16 pages) PDF
- Personal Emergency Plan: Complete and save 10 forms to protect you in case of emergency. PDF
- Things to Do Checklists: Everything you need to do to be prepared. PDF
- Basic Supplies Checklist: Everything you need to have on hand to be prepared. PDF
- Go Bag Checklist : Everything you should have ready to bring with you. PDF
- Using Your Devices Before and During an Emergency Technology Update 2013 PDF
- My Health Summary PDF
ONLINE VIDEOS FOR MY SAFETY, MY RESPONSIBILITY, MY PLAN
Please visit our YouTube page to view all Emergency Preparedness videos:
- Introduction (0:56)
- What You Need to Know to Be Safe (8:57)
- What You Need to Know About Yourself (11:46)
- Your Support People (2:42)
- What You Need to Plan in an Emergency (4:48)
- What You Need to Have in an Emergency (4:30)
- Fire Safety (3:38)
- Conclusion (1:45)
HEALTH SELF-ADVOCACY: MY HEALTH, MY CHOICE, MY RESPONSIBILITY
By Marilyn Vitale, Mitchell Levitz and Daniel Crimmins My Health, My Choice, My Responsibility is a training program developed at WIHD in collaboration with the Self-Advocacy Association of New York State (SANYS). Its purpose is to help individuals with developmental disabilities make healthy choices in daily life and speak up for good health. The seminar consists of eight sessions. Topics include: developing a health plan, self-advocating at the doctor’s office, physical activity, nutrition, safety and cleanliness in the home, hygiene, and emotional health. During each session participants receive information, learn the material through discussion, activities and visual aids, and develop goals. Collaboration with community resources, professionals, and agencies provide additional content and expertise to the seminar. The materials include a training program curriculum with a trainer’s manual and three health tools: (1) My Medical Appointment, a form to help prepare for medical appointments; (2) Health Information Form, a record of a person’s health needs and medical history; and (3) My Health Plan, a listing of goals developed during the seminar.
DOCUMENTS FOR MY HEALTH, MY CHOICE, MY RESPONSIBILITY
Available for Download TIP: For best download speed, right click on the link and choose “Save Target As” or “Save Link As” and save the file on your computer.
- My Health, My Choice, My Responsibility Trainer’s Manual Fillable PDF (1.7MB)
- My Health, My Choice, My Responsibility Training Program
Fillable PDF (1.7MB)
Individual Forms for My Health, My Choice, My Responsibility
- Health Information Form Fillable PDF (62KB)
- My Health Plan Fillable PDF(48KB)
- My Medical Appointment Fillable PDF(37KB)
SELF-PACED LEARNING APP FOR MY HEALTH, MY CHOICE, MY RESPONSIBILITY
My Health, My Choice, My Responsibility is also available as a self-paced learning App through iTunes, a product created in partnership with AbleLink Technologies.
HEALTH SELF- MANAGEMENT INFORMATION AND RESOURCES
“Taking Charge of My Health: Partners in Health Transition” provides information and resources on health self-management designed to guide teens and young adults with intellectual and developmental disabilities (I/DD), family members and caregivers to achieve successful health transition. The website draws on transition experiences of teens and young adults with I/DD, family members and caregivers, and it is based on self-determination framework. Website development was supported through a grant from the Special Hope Foundation. Link to website here: http://www.takingchargeofmyhealth.org/
NATIONAL GATEWAY TO SELF-DETERMINATION: RESEARCH TO PRACTICE IN SELF-DETERMINATION SERIES
“The purpose of this series, Research to Practice in Self-Determination, is to describe key issues in the field of developmental disabilities that can be enhanced by considering efforts to promote self-determination.” PDF
INTRODUCTION TO SELF DIRECTED SERVICES
Adults with Intellectual and Developmental Disabilities are increasingly accessing “Self Directed” services from the Office of People with Developmental Disabilities (OPWDD). This is a big change in how supports and services are provided, and the change can at first seem complicated and hard to understand. This brief introduction, the first in a series on Self Direction, describes the basics of Self Directed services.
To view on You Tube: https://www.youtube.com/watch?v=c8yWKdKvEFE
To view on Vimeo: https://vimeo.com/155841539
TRANSITION FROM EARLY INTERVENTION TO PRESCHOOL SPECIAL EDUCATION
The following learning module was created for parents about the transition process from Early Intervention (EI) to the Committee on Preschool Special Education (CPSE). The module will take you through the steps required for your child to make the transition from EI to CPSE. If you have any questions after viewing the module, please contact us at the Early Childhood Direction Center, either by phone at (914) 493-2902 or by email at email@example.com. We are happy to assist you in any way.
To view on You Tube: https://www.youtube.com/watch?v=dPeemjRcRio
To view on Vimeo: https://vimeo.com/158037108
The following special topics resource pages were compiled by WIHD’s experts. You can also search this website by topic, word or phrase using the search bar at the top of each page. If you need more information, you may contact us.
- Adoption & Post Adoption Resources
- Assistive Technology Resources
- Behavioral Services Resources
- Dental Resources
- Early Childhood Resources
- Emergency Preparedness
- Foster Care Resources
- Health Transition and Health Self-Management
- Housing Options
- Parents With Intellectual Disabilities
- School Age Child Resources
For articles authored by WIHD Faculty, Staff and LEND trainees CLICK HERE.