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Child Welfare Services
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Handbook for Families Adopting
a Child with Developmental Disabilities
CONTENTS
What should I know about developmental disabilities?
» Autism/Pervasive Developmental Disabilities
- Not Otherwise Specified (PDD-NOS) are neurological disorders
that affect a child's ability to communicate, understand language,
play, and relate to others. Signs of autism or PDD usually appear
before age three. Children with mild to severe forms may have:
- Problems with communication (that is, using and understanding
language),
- Difficulty relating to people, objects and events,
- Hyperactivity,
- Unusual play with toys and other objects,
- Increased sensitivity to and difficulty adjusting to changes
in environment, routine or familiar surroundings, and
- Repetitive, self-injurious, or aggressive behaviors.
»Cerebral Palsy is a group
of conditions that result in limited or abnormal functioning
in the parts of the brain that control movement. It is caused
by brain damage that has usually occurred before, during or
shortly after birth, generally because not enough oxygen or
poor blood flow reaches the fetal or newborn brain. It may also
result from an accident, lead poisoning, viral infection, child
abuse or some similar trauma occurring early in life. The three
main types of cerebral palsy, which may occur in any combination,
include:
- Spastic - stiff and difficult movement,
- Athetoid - involuntary and uncontrolled movement, and
- Ataxic - disturbed sense of balance and depth perception.
Children with cerebral palsy may have:
- Difficulty with control and coordination of the body,
- Speech and language problems, and
- Social and emotional problems.
»Down Syndrome is a condition caused
by a chromosome abnormality. The presence of forty-seven instead
of the usual forty-six chromosomes in a cell interferes with
the orderly development of the brain and body, resulting in
mild to severe mental retardation and other characteristics.
A child with Down Syndrome may have:
- poor muscle tone,
- Specific physical characteristics such as:
Distinctive facial characteristics including slanting eyes with
folds of skin at the inner corners and flat ridge of the nose,
Small oral cavity,
Small head,
Short neck,
Short, low-set ears,
Hyperflexibility (excessive ability to extend the joints),
Short broad hands with a single crease across the palm,
Broad feet with short toes,
- Short, high-pitched cries in infancy,
- Specific health related problems, including:
Visual problems,
Mild to moderate hearing loss and speech difficulty,
Lowered resistance to infection,
Heart defects and gastrointestinal tract problems that can be
surgically corrected,
Misalignment of the top two vertebrae of the neck that may make
the child more prone to injury, and
Tendency to become obese as the child grows older.
»Epilepsy, a seizure disorder, is
a physical condition that occurs when there is a sudden, brief
change in how the brain works resulting for a short time in
altered consciousness, movement, or actions. Epileptic seizures
can be generalized, involving all brain cells, or partial, involving
brain cells in one part of the brain. Generalized seizures may
consist of a convulsion with complete loss of consciousness,
or may look like a brief period of fixed staring. Partial seizures
may be characterized by periods of "automatic behavior" and
altered consciousness; the individual may exhibit purposeful
looking behavior that is unconscious, may be repetitive, and
is usually not recalled, such as buttoning or unbuttoning a
shirt. Some symptoms that may indicate epilepsy include:
- "Blackouts" or periods of confused memory,
- Episodes of staring or unexplained periods of unresponsiveness,
- Involuntary movement of arms and legs,
- "Fainting spells" with incontinence or followed
by excessive fatigue,
- Odd sounds, distorted perceptions, episodic feelings of
fear that cannot be explained.
»Mental Retardation is a condition
in which significantly below average general intellectual functioning
is accompanied by deficits in adaptive behavior. These characteristics
become apparent during early childhood and adversely affect
the child's educational performance. Children with mental retardation
generally score below average on intelligence tests, scoring
sixty-nine or lower. They often experience difficulties in learning
and communication, and in developing social and independent
living skills. Mental retardation occurs before the age of twenty-one
and falls into four levels:
- Mild retardation,
- Moderate retardation,
- Severe retardation, and
- Profound retardation.
Causes of mental retardation include chromosome abnormalities,
biological factors such as lack of oxygen, and problems in fetal
development resulting from maternal infections, blood incompatibilities
and inappropriate drug use.
»Neurological Impairment includes a
group of conditions that result from some form of dysfunction
of the brain or central nervous system that limits a person's
development, understanding, memory, attention span, fine motor
control, use of language, or ability to adjust to new situations.
Types of neurological impairments include:
- Childhood aphasia (difficulty using or understanding words),
- Minimal brain dysfunction, and
- Learning disability.
Children with neurological impairments may have:
- Difficulty in learning to read, write, spell or do math,
- Distractibility/short attention span,
- Impulsiveness,
- Lack of memory,
- Hyperactivity, and
- Immaturity.
Excerpts taken from:
Handbook for Families Adopting a Child
with Developmental Disabilities, Families
Together Adoption Project.
For a print copy check our publications
section.
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